Most of the information available online suggests DCIS is pretty much symptomless.
At the most, the possible symptoms, according to the Mayo clinic, could be a breast lump or bloody nipple discharge.
I had neither. However, I did have some unusual things happen that now make me wonder if they weren’t symptoms after all.
We have to remember that symptoms of a disease are only known IF they are reported to the medical professionals, and if those professionals take notice.
Back in 2012, when I was seeing my OBGYN leading up to my hysterectomy, he asked if I was having any unusual pain anywhere.
I mentioned that there was a few times that my whole left breast ‘spasmed’, to the point you could actually see the areola and nipple tightly contract. I’d even had my husband witness this because it was freaky weird.
The OBGYN dismissed it.
In the time following the spasms, up to the mastectomy, my breasts became ultra sensitive, very painful (to the point I had to wear a bra to bed) extremely itchy, and once or twice I had a clear, sticky, nipple discharge ( only from the non cancerous breast).
I’d suffered from fibrocystic breasts my whole adult life, and around the week before my period, I would experience some pain, but this was absolutely totally different.
As it turns out, at the time the DCIS was diagnosed, I had zero cysts in either breast.
Now, I’m not a breast cancer expert, and I’m not saying ANY of these were symptoms of my DCIS.
So anyone who happens to read this post and think ‘Yikes! I have those symptoms…do I have breast cancer?’ …DON’T!!!!
But, should you by any unfortunate twist of fate, have those symptoms AND have DCIS or IDC (invasive ductal carcinoma) it might be worth mentioning them to your Breast surgeon, oncologist, or ANY doctor that will listen and take it seriously.
I’m planning on bringing this up to my Breast surgeon, at my next visit also.
If you’ve had /have DCIS, please take a moment and vote on the poll above.