A fellow blogger reminded me today that I hadn’t posted anything about the dreaded mutant BRCA genes.
That’s mainly because, as of right now, the test for it hasn’t actually been a part of my breast cancer journey.
Yes! its been discussed, quite a bit in fact, but nothing has become of it.
I first mentioned it to my surgical oncologist back in January, and it was dismissed as ‘you don’t have breasts anymore, so no need to have the test, get your daughters to have it’.
I beg to differ.
Although my medical chart states that in 2012 I had a total hysterectomy, and I know he’s read that, I’m now wondering if he realizes that did not include removing my ovaries.
I still have those. And, because my breast cancer was stated in the pathology report as ‘highly hormone receptive’,
it is worrisome that a mutation of the BRCA genes would put me at an increased risk for ovarian cancer.
Not to mention I have daughters and granddaughters who would also be at risk if I have (and they have inherited) the mutated genes.
So I decided to further discuss it with one of my daughter’s OBGYN.
I asked him if he would agree for her to take the test.
When he became aware that it was me who’d had the breast cancer, he suggested I should be the one to have the test.
When I told him what the oncologist had said about it, he was gobsmacked, to say the least. His opinion is, it’s better to initially test one person (me) who’d actually had the breast cancer, than to test four (my daughters) who at present, hadn’t.
So now I am waiting for my follow up appointment with the oncologist in July, and then I’ll be pushing for the testing.
I’m adamant I’m having the test, hopefully I can make him agree.